In honor of Dementia Awareness Week held May 15-21, Emma Barrett, Programme Manager for Social Innovation Lab Kent (SILK), and Matthew Snyman, Author of The Dementia Diaries, have written a great piece about The Dementia Diaries. The book a collection of stories about young people and their experience with dementia.
Dementia. It does not care about geography, place or time. Dementia will touch all at some point in their lives, whether it be grandparents, parents, friends, partners or acquaintances. It is often difficult to talk about or share.
Dementia is a real life problem that we wanted to try and solve, so we asked for advice from grandchildren in families living with dementia. Children and young people have amazing talent for problem solving; they are fearless and often blunt, but can approach problems that adults struggle with in surprising, empathetic and intuitive ways.
So when we asked young carers what to do about dementia in our local communities in England, they were amazingly incisive. One teenager Jack, whose great-uncle had dementia, said “we need a book, where the facts are true and the feelings are real… a bit like Diary of a Wimpy Kid, but about dementia… so my friends in school understand what I’m going through”. It was as simple as creating an accessible and shareable way to talk about dementia.
And this was how The Dementia Diaries was born. A story that started in a community center in Kent, UK, but has touched hearts worldwide. The Dementia Diaries is about more than dementia. It is about giving a voice to people who do not have a voice. Ultimately it is about love, relationships and what it means to be human.
“…It is also a book about the wisdom of children and young people…it is a book about the surprising depths of love between generations. Written by young people who have the courage to face the brutal facts of life. It is carefully leading you by the hand into new perceptions and discoveries of one of the diseases we all fear. I have a sister who is now in the final stage of Alzheimer’s, and the book has made me laugh and giggle with her over and over again…”, said Jens Peter Jensen (Social Innovation Platforms, Denmark)
The Dementia Diaries was as much about the process of bringing people together as the book itself. We found many people facing isolation, dealing with day-to-day challenges alone. “Sharing my story, I now feel more open about living with someone with dementia and it’s not a big hush hush. I feel it should be shared now, and not kept to yourself”, said Raisa, one of the younger contributors to the book.
We are equally proud of the accompanying Learning Resource that is available to download for everyone who purchases the book. Nelson Mandela once said, “Education is the most powerful weapon which you can use to change the world”. What better way to inspire a dementia friendly generation for the future? The Dementia Diaries helps people to learn from real life human experience with a bit of humor thrown in for good measure. “Life can sometimes be hard, but guess what you can still live well with dementia”, said Brian, one of the contributing grandparents.
In this book, people will find heart-warming stories about the good days, bad days and everything in between with dementia. Full of handy tips, facts and activities, The Dementia Diaries reveals the other side of dementia through the eyes of those who know it best. Join Fred, Sam, Brie and Sarah to read all about their escapades with their grandparents. “These are not just Diaries, they are a real beacon of hope for the future”, said Angela Rippon, OBE. Read testimonials from other people here.
Join The Dementia Diaries communities on Facebook, Twitter and YouTube.
From May 15 – 31, readers can win a copy of the award-winning Dementia Diaries! To enter, LIKE Dementia from Jessica Kingsley Publishers on Facebook or FOLLOW on Twitter. The winner will be selected on June 1, 2016!
Matthew Snyman is an award-winning writer and filmmaker based in London, born in South Africa, but grown in Kent, UK. He is focused on creating great stories for young people and for the young at heart. Follow Matthew on Twitter and visit his website.
Emma Barrett Palmer is a social innovator and part of SILK’s founding team, the first lab of its kind in a UK government setting. She facilitated the co-creation of The Dementia Diairies and the book and learning resource. Emma is happiest with a pen and a blank sheet of paper. Follow Emma and SILK on Twitter.
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